One of the Haemophilia patients from the Free State, Bloemfontein Clerment Sefojane, is a servere Haemophilia A patient. He explains how he enjoys his life despite that he is a bleeder, “I have been a patient all my life” he says with a smile, He further explains that Haemophilia has not changed his life “Haemophilia has not change my life, as I live a normal life and I enjoying having fun with my friends”. He has always been a careful young man that he says I have not been in a life threatening situation before. Clerment also believes that one should work hard in life, so that they can live the life that they we wish to live.
Clerment says he has a good life and that’s all because of good friends “I’ve had a good life despite my condition, and I think that’s because of the unconditional love and support, I got from Family and Friends.” He further elaborates that “I haven’t been discriminated in fact I really enjoyed my childhood.” He says with a smile. Clerment studied Safety Management at Unisa, and he currently works as a Label Manager at Music Affair Records and he enjoys his work.
Clerment emphasised the point of going to school and working hard in life, in order to be successful “To all my family of bleeders, we have to work hard in life in order to be successful. So brothers let us not allow Haemophilia to stand in our way of achieving our dreams, let work hard and be the best we can be.” He said
Gloria Chumpitaz is a Haematologist from Peru, and she has working for the Peruavian Haemophilia Foundation for (ten) 10 years, and she enjoys single moment of it. She was inspired by her late mother, who was also a medical practitioner but she just fell in love with the Haemophilia patients and adores them.
Her patients ranges from 6 months to 75 Year old, and she says it’s not easy “I certainly enjoy my work but working with male patients especially haemophilia patients, can be very challenging because you must know how to make them open up to you. And sometimes that is the problem, especially with these older patients.”
Dr. Gloria 240 haemophilia patients and says it’s not easy because she has to understand her patients and have a good relationship with them “I think is not easy, because it’s necessary to combination personal life and work.” The doctor has a lot of experience when it comes to Haemophilia patients, but she can’t get used to the pain of losing one patient, (four) 4 month ago she lost a 15 year old boy. She says he was like a son to her. According to Dr. Chumpitaz, they lose about 1% patient per year.
Doctor Gloria encouraged the patients all over the world that “Its necessary work to improve the haemophilia treatment, educate more people about haemophilia as some people are still in the dark about it. Give relevant information to the people, and finally have a multidisciplinary team that makes sure that we work together as a family of builders”.
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